The Sparkle Nora Left Behind: A Family’s Fight to Change the Future of DIPG
Nora Bunn was just six years old when everything changed, suddenly and irreversibly, for her and her family. A precocious kindergartner from St. Louis with a deep love for animals, Nora was diagnosed with a disease that completely upended the energetic, wonder-filled life she embraced each day. On March 6, 2025, exactly one year after her diagnosis, she passed away at age seven from DIPG (diffuse intrinsic pontine glioma), an aggressive pediatric brain tumor with no cure. But Nora’s story isn’t defined by her death. It’s defined by her boundless energy, her love of learning, her fierce spirit of advocacy, and the sparkle she somehow held onto – even in the hardest moments.
