Nora’s Story

By: Jani Bunn, Nora’s mom for V Foundation

I texted those words verbatim to a former co-worker in the fall of 2023. At the same time, our then 6-year-old daughter, Nora, was battling a headache that wouldn’t go away. The pediatrician told her dad, Brent, and I, “Hydration and Ibuprofen.” We tried that but it lingered. She started dimming lights at dinner and turning off the TV. We insisted she be seen by a specialist. I scheduled an appointment with a pediatric neurologist, but by the time the appointment came, her headache subsided and overall seemed like her happy-go-lucky self. Nora bounced in, full of sass, and the specialist did a quick neuro exam, “Good news, it’s nothing serious.” I exhaled.

Physical therapy followed for what the specialist chalked up to a neck injury. Her PT noticed her eyes weren’t tracking correctly and referred her on to a brain concussion PT specialist. She completed her appointments with flying colors and was released by mid-February 2024.

Read the full story here

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The Sparkle Nora Left Behind: A Family’s Fight to Change the Future of DIPG