Our First Major Contribution to DMG/DIPG Research

Jan 28

We had a very SPARKLY day yesterday The University of Kansas Cancer Center. We (and when I write “we” I mean all of YOU … Nora’s “fans”) made our 1st major contribution to DMG/DIPG research.

We learned so much visiting Dr. Pyaram’s immunology lab - researchers often seek their own funding, how truly passionate these amazing minds are at finding more effective treatments for this horrific diagnosis, and the extremely strict govt rules that are placed on their work … suffice it to say our eyes were OPENED to their passion to make a difference.

At this time last year our beautiful girl was fighting so, so hard & slipping away. There are no words for the devastation & daily defeat brought to our family. There are no words for what now feels like “aimless wandering” trying to adjust to life without her.

My mom used to tell me – “If you don’t know what path to take, you make your own.” Thru hard work, connection, community and God’s grace … we made a path.

Yesterday felt good. Kinda like Nora was plugging holes in our broken hearts with lil’ glitter patches.

Jani, Nora’s mom